VASCERN PPL-WG monthly virtual meeting

natasha • May 14, 2019

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Hereditary Haemorrhagic Telangiectasia

Hereditary haemorrhagic telangiectasia

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Aneurysm Osteoarthritis Syndrome

Arterial Tortuosity Syndrome

Familial forms of bicuspid aortic valve with aortopathy

Familial thoracic aortic aneurysm and aortic dissection

Loeys Dietz Syndrome

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Rare disease with thoracic aortic aneurysm and aortic dissection

Medium Sized Arteries

Vascular Ehlers Danlos Syndrome

Pediatric and Primary Lymphedema

Anhidrotic ectodermal dysplasia-immunodeficiency-osteopetrosis-lymphedema syndrome

Cholestasis-lymphedema syndrome

Dahlberg-Borer-Newcomer syndrome

Deafness-lymphedema-leukemia syndrome

Genetic primary lymphedema

Hennekam syndrome

Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome

Lymphedema

Lymphedema-atrial septal defects-facial changes syndrome

Lymphedema-cerebral arteriovenous anomaly syndrome

Lymphedema-distichiasis syndrome

Lymphedema-posterior choanal atresia syndrome

Macrothrombocytopenia-lymphedema-developmental delay-facial dysmorphism-camptodactyly syndrome

Meige disease

Microcephaly-lymphedema-chorioretinopathy syndrome

Milroy disease

Monosomy 22q13

Non-hereditary late-onset primary lymphedema

Noonan syndrome

Noonan syndrome and Noonan-related syndrome

Noonan syndrome with multiple lentigines

Noonan syndrome-like disorder with juvenile myelomonocytic leukemia

Noonan syndrome-like disorder with loose anagen hair

Primary lymphedema

Primary lymphedema with associated anomalies

Segmental progressive overgrowth syndrome with fibroadipose hyperplasia

Syndromic lymphedema

Turner syndrome

Turner syndrome due to structural X chromosome anomalies

Yellow nail syndrome

Vascular Anomalies

Arteriovenous malformation

Blue Rubber Bleb Nevus syndrome

Capillary malformation-arteriovenous malformation

Cerebral arteriovenous malformation

CLAPO syndrome

CLOVES syndrome

Cutis Marmorata Telangiectatica Congenita

Diffuse neonatal hemangiomatosis

Facial arteriovenous malformation

Familial cerebral cavernous malformation

Generalized lymphatic anomaly

Glomuvenous malformation

Gorham-Stout syndrome

Infantile hemangioma of rare localization

Kaposiform hemangioendothelioma

Klippel-Trénaunay-Weber syndrome

LUMBAR association

Lymphatic malformation

Macrocystic lymphatic malformation

Maffucci syndrome

Megalencephaly-capillary malformation-polymicrogyria syndrome

Microcystic lymphatic malformation

Mixed cystic lymphatic malformation

Mucocutaneous venous malformation

Non-involuting congenital hemangioma

Parkes-Weber syndrome

Partially-involuting congenital hemangioma

PHACE association

Primary intralymphatic angioendothelioma

Proteus syndrome

PTEN hamartoma tumor syndrome

Pulmonary arteriovenous malformation

Rapidly involuting congenital hemangioma

Rare capillary malformation

SACRAL association

Spindle cell hemangioma

Sturge-Weber syndrome

Tufted angioma

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CADASIL

Moyamoya disease
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