Meet Aaike van Oord, new member of our European Patient Advocate Group (ePAG) for Vascular Anomalies! Aaike is also Chair of both the Lymphangiomatosis & Gorham's Disease Alliance and the LGD Alliance Nederlands! Welcome to VASCERN! ?? Read more here: https://vascern.eu/new-epag-patient-advocate-for-vascular-anomalies/ #ERNeu EURORDIS - European Rare Diseases Organisation Hevas VASCAPA.asbl Bundesverband Angeborene Gefäßfehlbildungen e.V. ... See more