Orphanet text on HHT updated by the VASCERN HHT-WG!
New article on the VASCERN website about how both the patients advocates and the healthcare professionals of the Hereditary Haemorrhagic Telangiectasia working group (HHT WG) collaborated to update the summary text on HHT in the Orphanet Encyclopedia for Professionals! Well done to all involved! ?? Read all about it here: https://vascern.eu/orphanet-text-on-hht-updated-by-the-vascern-hht-wg/ HHT Onlus HHT España Amro France HHT ... See more