The 5th meeting of the European Reference Networks IT Advisory group is underway in Brussels today! ? Prof. Guillaume Jondeau (VASCERN Coordinator) and Ibrahim Donmez (IT Helpdesk & End User Support Specialist) are present! Lots of great feedback from the ERNs on the Clinical Patient Managment System (#CPMS)! Sharing of difficulties and good practices will lead to improvements of the system, ultimately benefiting all rare disease patients in Europe?⚕??! #ERNeu European Commission ... See more