Research News: new collaborative publication presents the less common features of Marfan syndrome not listed in the Ghent nosology
? In case you missed it: a new collaborative publication entitled "Features of Marfan syndrome not listed in the Ghent nosology – the dark side of the disease" is available online! It is co-authored by members of Heritable Thoracic Aortic Diseases Working Group (HTAD WG) with help from the German Marfan Organisation (Marfan Hilfe - Deutschland e.V.), who provided a list of "unusual" symptoms and complaints from Marfan patients (i.e. their members and others seeking their advice). The clinical experts extensively reviewed the literature on the clinical features of Marfan syndrome not listed in the Ghent nosology and then compiled, evaluated and gave their expert opinion on the clinical significance of each feature.?? Read this very interesting review aticle here: https://vascern.eu/research-news-new-collaborative-publication-presents-the-less-common-features-of-marfan-syndrome-not-listed-in-the-ghent-nosology/ #Marfan AssoMarfansAsociación Síndrome de Marfan-España-SIMA . Marfan Europe Network ... See more
