A study published in Orphanet Journal of Rare Diseases analyses the conceptual framework of European Reference Networks, established in the context of the Cross-Border Healthcare Directive (2011/24/EU).
This study examines the factors affecting information and knowledge exchange and underlines the role that the ERNs will play in this exchange, with new communication technologies identified as key tools for the ERNs. The article strongly recommends that ERNs elaborate knowledge generation plans, and suggests that the ERNs will be pioneers in medical practice as a result of their digitised and networked approach.
Read the full article here