The European Commission (INEA Agency) has launched a Connecting Europe Facility (CEF) Telecom Call on eHealth for European Reference Networks on May 6th. This call for ERNs aims to facilitate the connection between members of ERNs by ensuring the adequate and efficient use of the ERN Core Services (Clinical Patient …

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The European Reference Network Project “EU collaboration to help patients with rare diseases” led by the ERN Team of the European Commission (DG SANTE) has received the European Ombudsman Award for Good Administration 2017! More information here

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Information on patients’ rights with regard to cross-border healthcare in the European Union: Leaflet on Patients’ Rights in Cross-Border Healthcare Video on Patients’ Rights in Cross-Border Healthcare Q&A on Patients’ Rights in Cross-Border Healthcare: List of National Contact Points in Cross-border Healthcare: Webpage in DG SANTE on the Cross-border Healthcare …

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European Reference Networks are gathering the best expertise to improve care in Rare Diseases in Europe. 24 ERNs covering all major Rare Disease groups – this link includes 1 factsheet per ERNs Officially launched and starting their work as of March 2017 involving 25 European Union countries plus Norway More than …

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More photos & live tweets on the VASCERN twitter moment of the Conference here VASCERN is back from the European Reference Networks Launch Conference, organised by the ERN Team of the European Commission DG SANTE, which took place in Vilnius on March, 9-10th.  A big thank to the team! Presentations & reports …

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The European Commission organises the 3rd European Reference Networks Conference in Vilnius on March, 9-10th. This event will be the official launch and start of the first labelized European Reference Networks (see here the list of approved ERNs). The conference (live webstream will be available here) on 9th will tackle …

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