Category Archives: News
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The European Commission’s EU Protects campaign (#EUProtects) aims to raise awareness of the various ways in which the EU combats global challenges to protect its citizens and their latest video features the European Reference Networks (ERNs)! Link to the video here The video features the story of Onni, a Finnish …
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The European Commission has just released a new flyer and video about the European Reference Networks aimed at informing patients and healthcare professionals about how the ERNs work. It introduces how the 24 ERNs convene virtual panels of experts in rare diseases in order to discuss complex clinical cases. This …
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VASCERN continues to expand its participation in the interERN Working Groups (WGs)! We are happy to announce that our representatives in the new interERN and Board of Member States (BoMS) integrated WG on Research will be: HHT-WG Chair, Professor Claire Shovlin (Hammersmith Hospital, Imperial College Healthcare NHS Trust, London, UK) and VASCA-WG …
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An interview with the Chair of the ERN Coordinators, Dr Franz Schaefer (from Heidelberg University), appears in this month’s Health-EU newsletter! In this article Dr Schaefer describes how the ERNs currently work and how involvement from local, regional and national healthcare providers, with the help of patient organisations, is so important …
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The first Central-Eastern European Marfan Symposium took place on Friday October 26th, 2018 in Budapest, Hungary. This symposium, focused on Marfan syndrome, was organised by two members of VASCERN’s Heritable Thoracic Aortic Working Group (HTAD-WG), Prof. Zoltán Szabolcs and Dr Kálmán Benke (with fellow members of the Hungarian Marfan Foundation), from the …