All presentations and videos from the ERNs Launch Conference, which took place in Vilnius on March 9-10th 2017 are available here
Author Archives: Marine Hurard
Information on patients’ rights with regard to cross-border healthcare in the European Union: Leaflet on Patients’ Rights in Cross-Border Healthcare Video on Patients’ Rights in Cross-Border Healthcare Q&A on Patients’ Rights in Cross-Border Healthcare: List of National Contact Points in Cross-border Healthcare: Webpage in DG SANTE on the Cross-border Healthcare …
European Reference Networks are gathering the best expertise to improve care in Rare Diseases in Europe. 24 ERNs covering all major Rare Disease groups – this link includes 1 factsheet per ERNs Officially launched and starting their work as of March 2017 involving 25 European Union countries plus Norway More than …
More photos & live tweets on the VASCERN twitter moment of the Conference here VASCERN is back from the European Reference Networks Launch Conference, organised by the ERN Team of the European Commission DG SANTE, which took place in Vilnius on March, 9-10th. A big thank to the team! Presentations & reports …
The European Commission organises the 3rd European Reference Networks Conference in Vilnius on March, 9-10th. This event will be the official launch and start of the first labelized European Reference Networks (see here the list of approved ERNs). The conference (live webstream will be available here) on 9th will tackle …
2017 is EURORDIS-Rare Diseases Europe, the European association representing rare diseases, 20th anniversary. This is the opportunity to look at 20 years of achievements and challenges ahead: here
New collaborative publications have been published these last months by the Chairs of VASCERN Pediatric and Primary Lymphedema Working Group, Dr. Robert Damstra and Prof. Sahar Mansour and her HCP substitute representative, Prof Peter Mortiner: Circumferential suction-assisted lipectomy in the treatment of primary and secondary end-stage lymphoedema of the leg. Lamprou …
The European Commission (DG Santé) has adopted on January 26th the Work Programme 2017 under the 3rd Health Programme. This WP includes funding for supporting European Reference Networks (ERNs) with a total budget of 4 600 000 euros (maximum 200 000 euros per ERN for coordination, management and non-clinical activities, through a Specific …
A new HTAD-WG collaborative research paper has been published by Prof Guillaume Jondeau and CRMR Marfan team members (Dr Olivier Milleron, Maud Langeois, Myrtille Spentchian, Prof Catherine Boileau) as well as HTAD-WG and HHT-WG Members (Prof Julie de Backer, Prof Yskert Von Kodolitsch, Dr Sophie Dupuis-Girod) and Centers cooperating with the network (Prof …