A new article has been published in ALS New Today that talks about the European Joint Programme on Rare Diseases (EJP RD), established in January 2019, with its coordinator Daria Julkowska. EJP-RD is an International consortium based in Paris, funded largely by the 28-member European Union, which intends to speed …
During the event « Equal access to care for rare diseases » organised by Friends of Europe (a leading Brussels-based think tank), that took place in Brussels on June 26, 2019, Eurordis’ CEO Yann Le Cam highlighted the success of the policies put in place to support people with rare diseases. He …
Following the adoption of the Commission Implementing Decision (EU) 2019/1269 of 26 July 2019 amending Decision 2014/287/EU, The European Commission will launch in the coming weeks the first call for new Healthcare Providers (HCP) full members to join the existing 24 ERNs. The concrete date for the opening and closing of the …
In order to support the European Commission’s actions and to improve the management of rare diseases, Eurordis has launched the #Pledge4RD campaign to challenge Members of the European Parliament (MEP) to pledge their support for rare diseases before the upcoming European elections (May 23-36, 2019). Their idea is simple: contact …
