Latest News
VASCERN Experts
Cardiologist
VASCERN HTAD European Reference Centre
Clinical Genetics, Radboud University Medical Center
Cardiologist
VASCERN HTAD European Reference Centre
Clinical Genetics, Radboud University Medical Center
Molecular Biologist
VASCERN HTAD and MSA Affiliated Partner Centre
The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus
Cardiac Surgeon
VASCERN HTAD Affiliated Partner Centre
National Institute of Cardiac Surgery and Interventional Cardiology, Centre Hospitalier de Luxembourg, Luxembourg
Vascular Surgeon
VASCERN HTAD and MSA Affiliated Partner Centre
Department of Sugery, Mater Dei Hospital, Malta
Dermatologist
VASCERN PPL Affiliated Partner Centre
Dermatovenereological Clinic, University Medical Center Ljubljana
Pediatric surgeon
VASCERN VASCA Affiliated Partner Centre
Department of Paediatric and Adolescent Surgery, University Hospital Graz
Plastic surgeon
VASCERN VASCA European Reference Centre
Karolinska University Hospital
ENT-Physician
VASCERN HHT European Reference Centre
Essen Center for Rare Diseases, Essen University Hospital
Cardiologist
VASCERN HTAD European Reference Centre
Department of Vascular Medicine, Department of General and Interventional Cardiology
University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf
Cardiologist
VASCERN HTAD European Reference Centre
Department of Vascular Medicine, Department of General and Interventional Cardiology
University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf
Cardiac surgeon
VASCERN HTAD European Reference Centre
Heart and Vascular Center, Semmelweis University
Cardiologist
VASCERN HTAD European Reference Centre
CRMR Marfan Syndrome and related disorders
Service de cardiologie, AP-HP, Hôpital Bichat-Claude Bernard
Cardiologist
VASCERN HTAD and MSA European Reference Centre
Clinical Genetics and Cardiology, Erasmus Medical Center Rotterdam
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphedema Centre, AZ Sint-Maarten, Mechelen, Belgium
Cardiologist
VASCERN MSA European Reference Centre
Rare Vascular Diseases Reference Centre
AP-HP, HEGP Hôpital Européen Georges Pompidou
Pediatrician
VASCERN VASCA European Reference Centre
Center of Pediatrics and Adolescent Medicine, University Medical Center Freiburg
Pediatric Surgeon
VASCERN VASCA European Reference Centre
Department of Pediatric Surgery, Helsinki University Hospital
Dermatologist
VASCERN VASCA European Reference Centre
UOC di Dermatologia Bambino Gesù Children’s Hospital
Consultant Pediatric Surgeon
VASCERN VASCA European Reference Centre
Department of Pediatric Surgery
Helsinki University Hospital Topeliuksenkatu 5
Internist expert in Lymphology
VASCERN PPL European Reference Centre
Consortium: AP-HP, HEGP Hôpital européen Georges Pompidou
French Reference Center rare vascular diseases, Primary Lymphedema Unit
Hôpital Cognacq-Jay, Paris
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphovenous Center, University Hospitals Leuven
Cardiac surgeon
VASCERN HTAD European Reference Centre
Heart and Vascular Center, Semmelweis University
Neurosurgeon
VASCERN HHT European Reference Centre
Essen Center for Rare Diseases, Essen University Hospital
VASCERN is one of the 24 European Reference Networks (ERNs) on rare diseases that were approved in December 2016, following the first ERN Call for proposals (European Commission, DG Health, March 2016) and that were officially launched in March 2017. Our ERN on Rare Multisystemic Vascular Diseases currently gathers 48 expert teams from 39 highly specialized multidisciplinary Healthcare providers (HCPs) plus 6 affiliated partner centers, coming from 19 EU Member States, in this area of expertise. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Center of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.
Take a look at our flyer here:
For the web version of the flyer, click here
For the print version of the flyer, click here
VASCERN includes six Rare Diseases Working Groups: Hereditary Haemorrhagic Telangiectasia (HHT-WG), Heritable Thoracic Aortic Diseases (HTAD-WG), Medium Sized Arteries (vascular Ehlers Danlos Syndrome) (MSA-WG), Pediatric and Primary Lymphedema (PPL-WG), Vascular Anomalies (VASCA-WG), Neurovascular Diseases (NEUROVASC). This scope will enlarge to include all Rare Multisystemic Vascular Diseases. The specific Patient-WG enables Patient representatives to work on common issues and to be involved in all activities. In addition, several Thematic Working Groups are established to better tackle transversal work packages on: communication, ethics, patient registry, and pregnancy.
All our HCP Members are Centers of Reference/Excellence recognized in their countries. These HCP have developed extensive European collaborations through their specific Rare Diseases’ networks. They joined this ERN to foster and reinforce European cooperation in Rare Multisystemic Vascular Diseases, following a common and multidisciplinary approach to patient care, in order to overcome the challenges of rarity.
They are committed to improve diagnosis, treatment, and care for and with patients by using all opportunities and activities, which can be offered by VASCERN.
Find out all information about our Network
All you need to know about ERNs
Media error: Format(s) not supported or source(s) not found
Download File: https://archivevascern.keeo.com/wp-content/uploads/2017/03/ern_videoclip_sub.mp4.mp4?_=1